Dear Madeline,
Everyone who has been involved in your care here at Hopkins so far has been quite impressed with your progress. Your surgery last night went very well, but it was also unexpectedly intracate. Shortly after you arrived pediatric intensive care unit after surgery, the PICU staff time and again marveled at your vital signs. They had expected you to experience a more challenging post-op recovery. What a champ you are!
The PICU nurses removed your breathing tube this morning and you are breathing very well on your own. Your chest x-ray is clear and PICU wants you outta there! They are a little concerned though. Despite my warnings, they are finding how fiesty you are and noted your increasingly level of aggitation. What they don't know is whether the aggitation is because you are in pain or because you are just so darn annoyed at being tethered to all of these wires and lines.
The nurses in the oncology wing just gave Mom and I a brief lesson in dealing with your central line and port. We saw a social worker earlier who gave us a book about childhood cancer written by parents who have been there. We also met with the hospital chaplain after seeing a priest who ministers to the sick here. All of them know what a fighter you are at such a young age, and all of them are impressed with your insistence on surviving but all doing so on your terms. We love you, Maddie!
Love,
Daddy
Everyone who has been involved in your care here at Hopkins so far has been quite impressed with your progress. Your surgery last night went very well, but it was also unexpectedly intracate. Shortly after you arrived pediatric intensive care unit after surgery, the PICU staff time and again marveled at your vital signs. They had expected you to experience a more challenging post-op recovery. What a champ you are!
The PICU nurses removed your breathing tube this morning and you are breathing very well on your own. Your chest x-ray is clear and PICU wants you outta there! They are a little concerned though. Despite my warnings, they are finding how fiesty you are and noted your increasingly level of aggitation. What they don't know is whether the aggitation is because you are in pain or because you are just so darn annoyed at being tethered to all of these wires and lines.
The nurses in the oncology wing just gave Mom and I a brief lesson in dealing with your central line and port. We saw a social worker earlier who gave us a book about childhood cancer written by parents who have been there. We also met with the hospital chaplain after seeing a priest who ministers to the sick here. All of them know what a fighter you are at such a young age, and all of them are impressed with your insistence on surviving but all doing so on your terms. We love you, Maddie!
Love,
Daddy
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