Dear Madeline,
We've made a few adjustments to our expectations since you arrived in the PICU. Or, more plainly, we've done a lot of waiting. It seems that not long after the PICU nurses told us yesterday afternoon that you'd be on you way up back to the oncology wing shortly, they started having difficulty managing your pain. In their wisdom, they decided that they enjoyed your company too much to let you go back upstairs. The only problem is that they forgot to tell Mom and Dad!
Mom and I waited with excitement and anticipation for you to arrive back in your room in oncology. And we waited some more. And then more. And more. Grandma and Granpa arrived hoping to see you. Aunt Beth came by after work to check in on you. No dice. We waited for hours with no news, and naturally our concern grew.
Down to the PICU we marched, looking for answer. When we learned that you were in such pain, we agreed that they should keep you until your condition improved. But we were so disappointed, not to mention worrried that your condition was starting to backslide. At least Grandma, Grandpa and Aunt Beth were all able to put on a moonsuit and spend time with you in the PICU.
We woke up early to catch your overnight PICU nurse and your incoming dayshift nurse with hopes that you had a better night and that there were few concerns about moving you back today. Indeed you did have much better night! You slept for 6 hours consecutively... unheard of in these quarters. They were quite optimistic that you'd be shipped out almost as soon as the pediatricians completed their rounds and PICU could complete the paperwork to move you back to oncology. After a bummer of a night and dreary start to the day, our spirits were greatly lifed. They brought you up at a little before 11. And it was good.
Yet more waiting on the pathology report and official diagnosis, and on being able to hold you in our arms again, but neither should be too far into the future.
We love you, Maddie!
Love,
Daddy
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